Changing the Narrative – World Down Syndrome Day 2025
Twelve years ago, I didn’t know the importance of 3/21, World Down Syndrome Day. I knew a few people with a child with Down syndrome and a few individuals with a Down syndrome
Nora, You Make Me Better
When Nora was born, we were told shortly after that she had Down syndrome. I remember asking if she would live and then crying . . . a lot. I prayed, cried, and begged God to let t
Bellamy’s CHD Story
Hello families! My name is Leah and our daughter, Bellamy, is a 4-year-old beauty who happens to have an extra 21st chromosome! In the early weeks of our pregnancy, we were inf
Miles, You Make Me Better
Miles makes everyone better! I think a common theme with Down syndrome, or knowing someone with Down syndrome is that they have the gift of slowing down time. Miles takes life and
Becoming an Advocate – Liam’s CHD Story
https://vimeo.com/1057577783?share=copy#t=0 Up next in our “Heart Warrior Wednesday” series is Liam! His mom, Rebecca, shares the journey they have been on between his
“Coming Home” – Josh’s CHD Story
Coming Home “She’s going to need open heart surgery soon after she’s born,” said Ashley. I heard the quiver in her voice as we spoke on the phone. I had been connected with
Celebrating Our Heart Warriors – Elijah’s Story
February is Congenital Heart Defect Awareness Month. About 50% of babies with Down syndrome will be born with some form of heart defect. Each week this month we’ll be sharing
Connor, You Make Me Better
Initially, I wasn’t phased by the news that our son would have Down syndrome when we received our prenatal diagnosis. Then, we found out he had a heart defect and I started t
Jack’s Basket Turns Uncertainty Into Celebration for Parents of Newborns with Down Syndrome – Good Day PA ABC27 – 1/24/25
https://vimeo.com/1050137612?share=copy#t=0 Founder & CEO Carissa Carroll and Basket Recipient/Basket Delivery Parent Crystal Christman join Good Day PA to share the mission of
“Congratulations!”
“Doesn’t it feel insensitive to say “congratulations” when the family is struggling with the new diagnosis?” This is a question I have been asked many times since