Millie, You Make Me Better
Becoming Millie’s Mom:
It was late in the evening when I received a text saying that my results were ready. It asked if I would like to access them.
We had completed the early 12-week screening to find out our baby’s gender. The test also screens for major chromosomal abnormalities, but in our minds, this was the moment we were finally going to find out if we were having a boy or a girl.
We were so excited that we started recording a video to share with our close family and friends. I was convinced I was having a boy.
We opened the results, and a robot began texting us.
Before the gender reveal ever appeared on the screen, I saw the words: 95% chance of Trisomy 21.
More words kept popping up, but I remember feeling frozen. Everything suddenly felt surreal. I kept clicking, trying to get off that screen. I just wanted to know if my baby was a boy or a girl.
Finally, the robot told us that our sweet baby was a girl.
My husband and I cried so very hard that night.
I was scared. I didn’t know anything about Down syndrome. The only things I thought I knew came from fear-filled stories, social media, and the worst-case scenarios often presented by doctors.
But even in that moment, one thing was certain: I was going to keep my sweet baby girl. Whether she had a 95% chance or a 100% chance of having Down syndrome, she was my daughter, and I was going to love her.
I immediately started searching for information about individuals with Down syndrome. I remember coming across several influencers with Down syndrome who were absolutely crushing life. They were thriving: working, advocating, modeling, dancing, and living full, beautiful lives. As my social media feeds filled with more stories like theirs, my fear slowly began to be replaced with hope.
I chose not to pursue further testing to confirm the diagnosis during my pregnancy. For me, it wouldn’t change anything.
Still, I worried.
I worried that she would have major health complications at birth. I worried about miscarriage. I worried about stillbirth. Like so many mothers, I carried those fears throughout my pregnancy.
But my story didn’t end there.
My sweet girl came into this world after an easy labor.
The hospital staff shared that they believed she had Down syndrome based on her physical features, and they would complete lab work to confirm the diagnosis.
Then they handed me my beautiful baby.
And I cried.
Not tears of sadness, but tears of joy.
My little miracle had made it earthside, and she was healthy. She didn’t need extra NICU support. She was finally in my arms.
Millie has taught me more about love, patience, resilience, and joy than I ever could have imagined. She is the sweetest, most loving little girl I have ever met. Her smile lights up every room she enters, and the way she loves others is something truly special.
If I could go back and sit beside the version of myself who received that text message late one evening, I would hold her hand and tell her this:
Your daughter is going to change your life in the most beautiful ways.
There will be hard days, but there will be so many more wonderful ones.
The diagnosis that once filled you with fear will become only one small part of who she is.
She will first be your daughter.
She will be funny, stubborn, determined, and loving.
She will exceed expectations.
She will teach you to celebrate milestones that others take for granted.
And she will show you that a life with Down syndrome is still a life filled with dreams, happiness, and endless possibilities.
Becoming Millie’s mom has been one of the greatest privileges of my life.
And if I had the chance to choose her all over again, I would choose her every single time.
–Kali, Millie’s Mom (Missouri)
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