Provider Resources
Jack’s Basket is committed to celebrating babies with Down syndrome by impacting how their stories begin. We are here to equip you with the tools and resources you need to deliver a Down syndrome diagnosis in an accurate, empathic, and unbiased way, in hopes that families will be encouraged to celebrate their pregnancy and their baby like any other. As a part of our mission we:
1.
Equip providers with tools to communicate the diagnosis accurately without bias through provider-to-provider training, medical modules, and peer-reviewed journal publications.
2.
Encourage providers to recognize the critical role they play in a family’s story and to reshape these discussions from “breaking bad news” to “sharing unexpected news.”
3.
Reframe the narrative around Down syndrome by sharing stories of families who overwhelmingly come to view their child’s diagnosis with positivity and optimism, even after experiencing shock or grief when first learning of the diagnosis.
Resources for Patients
Share these resources with families who are receiving a Down syndrome diagnosis.
New Family Handout
This resource is a great way to introduce families to Jack’s Basket! It offers a quick look at who we are as an organization, what’s included in each basket, and a QR code for you or the family to request a basket. We encourage you to have this resource on hand any time you are giving a diagnosis of Down syndrome.
Prenatal Consult Film
Preparing to give a prenatal diagnosis of Down syndrome? Share our Prenatal Consult Film with your patients today! This film helps shed light on the unknowns that families face with a diagnosis of Down syndrome, and provides hope for their journey ahead!
Provider Resources & Education
Use these resources in your practice and share them with other colleagues.
Curriculum: "Communicating Unexpected News"
This free, self-guided curriculum was created by providers for providers and is for all Medical Learners. It is worth 10 AMA PRA Category 1 Credit(s)™.*
7 Strategies for Delivering Unexpected News
Request Resources
Printed versions of each of these materials are available in our medical resource packets. You can request a complimentary packet.
Jack's Basket Provider Training
“I have some bad news” – When Unexpected News Isn’t Always Bad
At Jack’s Basket, we are reframing the ‘breaking bad news’ paradigm in the healthcare community.
Our implicit biases may cause us to share unexpected news as objectively bad and research shows that families would not say a Down syndrome diagnosis is bad, it’s simply unexpected.
Strategies for Providers in Sharing the Diagnosis of Down syndrome: Video
The story starts for families when the diagnosis is given. This video highlights the work of Jack’s Basket by providing strategies for medical clinicians to use when sharing the diagnosis of Down syndrome with new families.
Video Abstract for Pediatrics Journal Publication July 2018
Recognizing Provider Bias When Sharing Unexpected News: Article
“In this article, we will share a family’s journey that highlights where these 2 concepts (breaking bad news and implicit bias) often intersect. Our purpose is to shine a light on an important lesson for providers: that often we bring our own biases to the table when we frame news as “bad” when ultimately, from a family’s perspective, it may not be bad at all.
The Art of Medicine: Expanding our Toolkits in the Art of Communication – Self Assessment
This tool is only available for ABP members with an ABP account. To access the module:
1 – Log-in to your ABP Portfolio
2 – Click on Activity Search
3 – Click on Self Assessment Part 2 Search
4 – Search “Art of Medicine’“ to find Part 2 Activity
This module is approved for Maintenance of Certification points.
Additional Training for Medical Professionals
Health Supervision for Children and Adolescents With Down Syndrome
From the American Academy of Pediatrics | Clinical Report | Updated May 2022
Lettercase free online learning modules
The Lettercase National Center for Prenatal and Postnatal Resources is part of the University of Kentucky’s Human Development Institute.
